Family conferences exist to allow families/caregivers to come together and create a community around their child’s disease. New and valuable information can come from these conferences that give families a better understanding of the disease, which can result in enhanced clinical care or possibly even a new direction in research. Families need to know they are not alone; they need hope.
The application process is now closed for 2018 conferences. If your child has a neuromuscular disease and you would like to attend a family conference in 2019, the application process will re-open from January 1, 2019 to March 15, 2019. Please contact Lindsay Ballew at firstname.lastname@example.org with any questions.