Family Conferences Travel Grant

Family conferences exist to allow families/caregivers to come together and create a community around their child’s disease. New and valuable information can come from these conferences that give families a better understanding of the disease, which can result in enhanced clinical care or possibly even a new direction in research.  Families need to know they are not alone; they need hope.

The application process is now closed for 2018 conferences.  If your child has a neuromuscular disease and you would like to attend a family conference in 2019, the application process will re-open from January 1, 2019 to March 15, 2019.  Please contact Lindsay Ballew at with any questions.

Name of child:

Name of parent/caregiver applying for travel grant:


Phone Number:

In what state do you live?

What is your child’s diagnosis and when were they diagnosed?

What is your child’s date of birth?

Do you have other children with this disease?

Have you attended a family conference for your child’s illness? If so, which conference?

What conference are you wanting to attend and when is the conference?

If you attended a past conference, what did you most get out of that conference?

What do you hope to get out of this family conference?

Which family members will be attending the conference?

If you receive this grant, how will this impact your family?

Do you give us permission to use your name/story/photo in marketing and social media?

Parent/caregivers signature (type name) that all answers are true and accurate.