Family Conferences Travel Grant

Family conferences exist to allow families/caregivers to come together and create a community around their child’s disease. New and valuable information can come from these conferences that give families a better understanding of the disease, which can result in enhanced clinical care or possibly even a new direction in research.  These families need to know they are not alone; they need hope.

Applications are now being accepted for families who would like to attend a family conference for a pediatric neuromuscular disease.  Applications will be reviewed and the applicant will be contacted within 6 weeks of receipt of the application.

Please contact Lindsay Ballew at with any questions.

Name of child:

Name of parent/caregiver applying for travel grant:


Phone Number:

In what state do you live?

What is your child’s diagnosis and when were they diagnosed?

What is your child’s date of birth?

Do you have other children with this disease?

Have you attended a family conference for your child’s illness? If so, which conference?

If you attended a past conference, what did you most get out of that conference?

What do you hope to get out of this family conference?

If you receive this grant, how will this impact your family?

Do you give us permission to use your name/story/photo in marketing and social media?

Parent/caregivers signature (type name) that all answers are true and accurate.