Family conferences exist to allow families/caregivers to come together and create a community around their child’s disease. New and valuable information can come from these conferences that give families a better understanding of the disease, which can result in enhanced clinical care or possibly even a new direction in research. These families need to know they are not alone; they need hope.
Applications are now being accepted for families who would like to attend a family conference for a pediatric neuromuscular disease. Applications will be reviewed and the applicant will be contacted within 6 weeks of receipt of the application.
Please contact Lindsay Ballew at email@example.com with any questions.