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The Thisbe and Noah Scott Foundation is a catalyst for groundbreaking research. In just a few short years since our inception, we have already achieved remarkable success, bringing us closer every day to our research goals for neuromuscular diseases. Discover a BVVL gene. Check. Hire a top-notch researcher to develop an animal model. Check. Discover a treatment for BVVL. Check. Check. Check.

Now, we need your help to check off all of the diseases that remain; to implement programs that will help patients and their families medically, mentally, emotionally, physically….; and to spread the word.